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Familial dysautonomia life expectancy Currently, the mean age of the familial dysautonomia population is approximately 15 years 12) . By statistical projection, babies born with familial dysautonomia in 2006 have a 50% chance of surviving to 40 years of age.
Life expectancy of people with Dysautonomia / POTS and recent progresses and researches in Dysautonomia / POTS. POTS itself is not a life-threatening condition, even though it may not airways feel that way at times. Other comorbid conditions associated with POTS and other forms of dysautonomia can, however, lower a person's life expectancy.
Familial dysautonomia is a serious condition that is usually fatal. There is no cure. Life expectancy has dramatically improved over the last 20 years with better symptom management, but symptoms can still make daily life challenging. The condition often leads to a syndrome called an autonomic crisis.
There are some forms which abate over time and do not affect the life expectancy, but leaves the person quite disabled. Whereas, there are other forms of dysautonomia, which are progressive with degeneration of the central nervous where the prognosis is quite poor with death resulting from respiratory failure or sudden cardiac arrest.
But people with this condition usually have a life expectancy of only about 5 to 10 years from their diagnosis. It’s a rare disorder that usually occurs in adults over the age of 40.